Eden C.

Condition: Congenital Heart Disease
City, State: Bend, OR
Club: Seven Peaks School Sparrow Club Service Hours: 626
Date Adopted: 2/15/2012

Eden's Story:
Eden was supposed to be a normal healthy baby.  As a matter of fact, when she was born, she was almost perfect.  It wasn’t until a few minutes later that nurses discovered that her oxygen levels appeared low.  After checking, nurses found a heart murmur and the doctor ordered additional tests.  That is when it was discovered that Eden had only half a heart and a condition called pulmonary atresia.  
She was immediately flown to Doernbecher Children’s Hospital in Portland where doctors began running additional tests.  She was intubated (a procedure where they insert a tube down the airway to keep it open) and given medicine to help keep her pulmonary duct open.  If this duct were to close, she would suffocate and die.
After testing, doctors diagnosed three additional disorders and determined that her only chance of survival immediate surgery.  At just 7 days old, Eden underwent her first open heart surgery to put in a BT shunt and help correct some of her valve problems.  Her prognosis was not good and doctors did not know if she would make it.  She came out of that first surgery well but within minutes of being in recovery, suffered a cardiac arrest.  Fortunately, she was in the right place and within 4 minutes, doctors had her heart started again.
Eden spent the next 4 weeks in the NICU in Portland.  The days following surgery had many ups and down and her prognosis still was not good.  When the family was finally able to return home, Eden’s mom and dad, Brandy and Cody, had to learn how to give her blood thinner shots 2 times a day and feed her through her NG tube.  They were told that Eden only had a 20-25% chance of survival while she waited for her next surgery.  She had to be constantly monitored for her oxygen levels and weight.  By the time she was 4 months old and ready for her next surgery, her oxygen levels were very low.  She was gray and pasty and did nothing but sit still.
Her second surgery, the Glenn procedure, happened in September.  This surgery was to take out the BT shunt placed earlier.  They also clipped her Aorta and plugged it in to where the shunt was.  She came through the surgery well and only had to remain in Portland for about 10 days.
Right now, Eden is stable and doing well.  She still needs to be constantly monitored to make sure her oxygen levels don’t go to low.  She has to avoid getting sick as this poses a major threat to her health.  She will undergo a third surgery at the age of three.  After that, they just aren’t sure what the prognosis will be.  
Eden is a beautiful little 8 month old girl with a precious smile.  Her life is a miracle and her parents are so thankful for the time they have had.  
Sparrow Cash raised for Eden will pay for a heart specialist in Portland who can provide specialized care for Eden and hopefully help to raise her quality of life.  It will also go towards the purchase of an oxygen machine, as she will need to have her levels monitored for the rest of her life.


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