Condition: Cornelia DeLang Syndrome - Developmentally delayed, heart, eye & hearing problems
City, State: OR
Club: Eagle Point High School Sparrow Club Service Hours: 1875
Date Adopted: 10.01.2008
Daisy's Story:(2/12/10) Daisy is a happy and petite two-year-old. �At just over 21 pounds, she has lots of brown curly hair, big brown eyes and is fast to smile. Daisy has been diagnosed with Cornelia De Lang Syndrome. �This developmental disorder affects many parts of the body. �Usually development is very slow and children with this disorder are typically short in stature, have problems with speech, their heart, digestive tract, and hearing. �Because of this, Daisy is working with Child Development and is doing really well in all areas. �Her parents have been concerned about her speech but are optimistic as she has recently learned a few words. �Daisy has a heart murmur and digestive trouble so she visits her doctors often so that they can monitor these issues. Daisy lives with her mom and dad, grandfather, two uncles and brother. Needless to say, Daisy's need for special services has put a strain on this family. �� Daisy loves music and television, and even though she can't walk yet, she is working on her dancing skills. This little girl easily captures the hearts of all who meet her.