Anya R.

Condition: Type 1 Diabetes; Asthma; IGA Deficiency
City, State: Bend, OR
Club: Westside Village Magnet School Sparrow Club Service Hours:
Date Adopted: 10/26/2016

Anya's Story:

Anya is a beautiful 14-year-old girl who looks completely healthy, so you would never know the physical struggles she faces daily. She was diagnosed with asthma at age 3. Then at 5 ½ years, she was diagnosed with Type 1 diabetes, which brought many new challenges that she’s had to learn to live with. Most recently at age 12, there was the IGA deficiency diagnoses.

IGA lives in our blood stream to protect us from infection, but Anya doesn’t have it in hers so when she gets a sinus infection, ear infection, or even a ‘common cold’… she gets REALLY sick. Her immune system is very compromised.

Anya is very active and likes to skateboard, do outdoor activities, and ski and snowboard in the winter. But she has to plan out all her activities very carefully due to her asthma and diabetic issues. She has to carry her medications and supplies with her at all times. She has a device that alerts her when her insulin gets low. She often feels fine one minute and then totally exhausted and worn out the next.

Anya has a service dog named Journey. He’s
a great companion and has often alerted her parents when Anya is sleeping and her insulin has dropped dangerously low and she hasn’t woken up.

Anya has learned to live with these challenges and keeps a positive outlook on life. She has a great heart and looks for opportunities to help younger children who are struggling with medical issues too.

Although Anya has endured through many tough circumstances… she is a happy, caring, inspirational young lady that loves to sing and play her ukulele, and interact with her family and friends. She brings joy to everyone that has the privilege of knowing her.

Sparrow Cash raised for Anya will help with ongoing medical expenses, travel to Seattle, and everyday living expenses. Students at Westside Village Magnet School will “earn” Sparrow Cash by completing a minimum of
256 hours of sponsored community service.

sponsor(s):

Deschutes Brewery
Deschutes Brewery