Amber A L

Condition: Spina Bifida
City, State: Sisters, OR
Club: Sisters Elementary School Sparrow Club Service Hours:
Date Adopted: 10/05/2015

Amber's Story:

Amber has the most infectious smile around. Between running, jumping and her high energy level, her beautiful spirit shines through. It can be difficult to see that Amber has had a rough journey in her five years of life. Amber was born prematurely at just 32 weeks and instantly diagnosed with spina bifida, a birth defect in which a developing baby's spinal cord fails to develop properly. She was rushed into surgery right away and then spent the next three months in the NICU at St. Charles in Bend.

As she has continued to grow, doctors noticed her spine was not forming properly. Amber was then diagnosed with scoliosis and kyphosis. Scolisis is a sideways curvature of the spine and Kyphosis is an outward curvature of the spine. She is set for surgery at Shiners hospital this winter.

Amber is a warrior and has persevered through eight surgeries so far in just five short years. Amber has been diagnosed with a host of other ailments as well including neurogenic bladder, which causes the use of a catheter. She is catheterized four times daily! Amber keeps busy with weekly trips to Bend for numerous forms of therapy and then a trip to Portland at least every three months.

Now, at five years old, Amber is a fun loving little girl who loves to play, dance and in her words, “go to sleep”. She may have her struggles, but she is every bit as tough, if not tougher, than other kids her age. She loves her family and interacting with everyone she meets; she has a lot of friends.

Amber will be adopted as a Sparrow to Sisters Elementary School. Students will work hard to raise money for Amber through sponsored community service and fundraising projects.

sponsor(s):

Weitzman Family Foundation
Weitzman Family Foundation