Nathan's Story
(2.04.09) Nathan is a happy, bubbly little 9-month-old boy. Diagnosed at 2 days old with a genetic disorder called Rubinstein Taybi Syndrome, he has had to deal with a lot of pain from the beginning. RTS as it is known, is a protein deletion that happens on the 16th chromosome. What this means is that his internal organs do not function properly and he is developmentally delayed. Nathan has had many surgeries already in his short life. Doctors have recommended various daily therapies to make life a little easier for him and if he receives them, the effects of this syndrome will not be as severe. However his insurance only covers a minimal number of therapy sessions, so the family is forced to pay out of pocket for his many therapy session. He cannot be around other people as a virus could be deadly for him. Nathan loves his water therapy sessions and toys that light up and make music. Sparrow cash raised will be used for additional therapy sessions, medical expenses and travel expenses to specialists in Portland.